Friday, August 29, 2008

Lurking Amongst Poets



The University of Iowa Press has supported the release of Seven Wheelchairs: A Life beyond Polio with an advertisement in Poets & Writers Magazine.

Thanks to Allison Thomas at the Press for all her hard work in getting the word out about Seven Wheelchairs.

Monday, August 25, 2008

In Hard Cover and Soon on the Shelves


Shall we call it analogous to the gestation period of the elephant? No, that's too short. Frankly, I cannot remember when I began to think book. I only know that The Book I thought about, dreamed about, doubted would ever be real all those years ago arrived via Fed-Ex shortly before noon today.

The in-print copy of Seven Wheelchairs: A Life beyond Polio.

A Real Thing.



The editor at University of Iowa Press says that anyone purchasing Seven Wheelchairs from another source may have the purchased copy delivered to the
University of Iowa Press in care of Gary Presley. I will sign the copies, and the Press will mail them to the purchaser.


University of Iowa Press
119 West Park Road,
100 Kuhl House
Iowa City IA 52242-1000.

Sunday, August 24, 2008

Is Tropic Thunder "Dumb?"


The discussion about the sometimes ugly and derogatory language in Tropic Thunder continues among disability activists, although in a more nuanced form. One particular op/ed struck me as an example of how hard we human beings strive to name ourselves and to hold on to the image that name embodies.

Here's the opening of the piece

Richmond Times-Dispatch
The Term 'Retard' Is a Big Deal to People Like Me
Sunday, Aug 17, 2008 - 12:05 AM
By John Franklin Stephens
What's the big deal about using the word retard? A lot of people are talking about the movie Tropic Thunder that opened in theaters Friday. One of the reasons that it is being talked about is that the characters use the term "retard" over and over. They use it the same way that kids do all the time -- to jokingly insult one another. The people who made the movie, DreamWorks and Paramount, and many of the critics who have reviewed it, say that the term is being used by characters who are dumb and shallow themselves. You see, we are supposed to get the joke: Only the dumb and shallow people use a term that means dumb and shallow. My dad tells me that this is called "irony."

My fanny has been in a wheelchair for 49 years, from adolescence to retirement, and so I've heard about 99% of all the words thrown at folks like us.

About 25 years into that journey, however, I married a woman who happened to be born with a severe hearing impairment. Her mother taught her to speak, a feat remarkable beyond belief since my mother-in-law has nothing more than a high school education. But my wife has an accent -- which makes her disability visible, so to speak -- and of course, she sometimes misses words or phrases.

All that is said to note this: my wife hates beyond description the word "dumb."

Looking back, it seems strange that nowhere in the process of obtaining in the process of obtaining a Masters degree and three medical science certifications did anyone teach her that the meaning of "dumb" in the context of "deaf and dumb" is to be mute -- speechless because of the inability to hear.

I love words, this marvelous human capacity to express emotions through sound, and so, given my interaction with my wife, it struck me as intriguingly ironic that the John Franklin Stephens editorial employed the phrase "dumb and shallow" to characterize people.

Of course, my wife has known for several years that "deaf and dumb" means "hearing impaired and unable to speak," but she grew up believing that she was being called stupid whenever her hearing impairment was exposed in some way that attracted notice.

And in fact, she was.

"Dumb" was being used against her, used to bully and demean her, because "dumb" in the culture of the 1960s and 1970s had come to mean stupid, at least as popularly employed, rather than unable to speak.

This in no way is a defense of the word "retard" or an attack on John Franklin Stephens. But listening to the debate reminds me how far we have come over the last few decades.

I've lived through being seen as an invalid, to a shut-in, to being handicapped, right down to being seen as an obnoxious crip, a label I'm beginning to prefer.

But now, hide grown thick and attitude far more tolerant, I comprehend that the image human beings carry of themselves is fragile, at least to those of us with the normal range of emotions and neuroses.

And sometimes the only solution is to dress up in our screw-you clothes and keep motoring on.

Thursday, August 21, 2008

"Tropic Blunder:" Opposing Views


Dear Mr. Stiller,
You hurt me today. Personally. I am writing to protest your action against me, I am writing to hold you accountable. Not that I imagine you care, but I wish to explain myself to you. ... I read interviews with you on the web. Interviews that explain that I 'don't get it' that the humour is about shallow, self absorbed actors, not about people with disabilities. Mr. Stiller, I submit to you that your reaction, your denial, in the face of reasonable protest, reasonable requests and reasonable explaination could only be the reaction of a shallow, self absorbed actor. A person that cannot see beyond his need to express to the need of others to be safe. A person that cannot understand protest as anything other than hysterics.




Any person with a disability who has been the target of the R-word knows it is painful. But for decades, many of us have tried to get the media, especially Hollywood, to realize it’s even more hurtful to exploit disability-themed inspiration and pity in order to get a prize of some sort. It seems if an actor wants to get an Oscar nomination then all he has to do is play a guy with severe cerebral palsy, like Daniel Day Lewis did in “My Left Foot.” Or play a depressed blind guy, like Al Pacino did in “Scent of a Woman,” who can be saved only through the ministrations of a young, idealistic nondisabled person. Or play a guy who is so simple he runs across the country on a whim and finds himself central to tremendous historical events that he has no understanding of, like Tom Hanks in the insipid “Forrest Gump.” These films laced with stereotypes encourage viewers to have the following thoughts: “Those people are so heroic, I could never live like that. … Oh, how wonderful that handicapped boy could overcome adversity. … Oh, how tragic that poor young crippled boxer in ‘Million Dollar Baby’ must live such an awful life through no fault of her own, no wonder she wanted her coach to kill her.” And on and on.


Friday, August 15, 2008

Looking at TROPIC THUNDER


Jerry Stiller's son, Ben, has a new movie hitting the screens, Tropic Thunder, which is a send-up of the movie game itself.

Folks from ARC and other disability rights organizations are upset, not because Stiller sometimes makes a bad movie and this is one of them, but because Stiller's character uses the "r-word" -- retard.

Film critics stand firm against 'Tropic Thunder' protests by advocates for the disabled says The Los Angeles Times ...
"Never go full retard," Lazarus tells Speedman. Actors who win critical acclaim, including Dustin Hoffman in "Rain Man" and Tom Hanks in "Forrest Gump," Lazarus adds, play partially disabled. Those who go "full retard," such as Sean Penn in "I Am Sam," get shut out during awards season.

Advocates for the mentally disabled seized on the scene in their protests against the new comedy and launched a national film boycott. "Name calling is a subtle but malicious practice that only serves to perpetuate stigma, fear, intolerance and more," Tim Shriver, chairman of the Special Olympics, said at a protest at the "Tropic Thunder" premiere Monday.
Following the saga as it's discussed by a few disability rights advocates has been interesting. It was also discussed briefly on a local radio morning program -- "What's the harm?" was the gist of the conversations.

Frankly, since disability rights ranks relatively low on the activism totem pole, I'm surprised there hasn't been more flak about Robert Downey, Jr.'s appearance in blackface for his role in Tropic Thunder.

The same Los Angeles Times that downplays the retard label headlines a news story regarding that issue with ...

'Tropic Thunder' brings issues about cinema and race back to the fore ...


On the other hand, there is Downey in "Tropic Thunder," who rubs the audience's face in the fact that we are not remotely "over" race -- or, to be precise, racism. Paradoxically, the zeitgeist that accounts for the ascendancy of Smith also makes Downey's performance possible. This is because the political correctness quotient tends to dip in less-straitened times. Instead of being grossly offensive, Downey's Lazarus comes across as a daring racial jest. (The jest would have been even more daring if he had been American.)

(Stiller's caricature, which has already drawn protests from more than half a dozen disabilities organizations, lacks the cutting edge of Downey's racial whammy. It's closer to goony, Farrelly brothers-style bad taste).

The idea seems to be that the actor's skill nullifies the denigration. Perhaps that's so.

All I know is that one of the more intelligent comments about the issue came from a professor at American University as quoted in the Pittsburgh Post-Gazette.

Celine-Marie Pascale, an American University sociologist who analyzes language and representation, said: "There's probably nothing more fundamental to civil rights than the ability to name oneself. You wouldn't call someone a 'Negro' today, and we use 'Asian' instead of 'Oriental.'

"Retard is a slur that opens up wounds," she said. "Even if the movie is spectacular, it imbeds that speech in society. You can't legislate against it, but you can advocate about the damage that gets done."

Friday, August 1, 2008

Appearing on Iowa's NPR Affliliate


To promote the launch of Seven Wheelchairs: A Life beyond Polio, the University of Iowa Press has arranged for me to be interviewed by The Exchange, with Ben Kieffer on Iowa Public Radio.

The date will be October 3rd, 2008 at 10am.

I suggested to the Press representative that Mr. Kieffer be prepared for a guy who sounds like an odd combination of Jimmy Stewart and Mickey Mouse highlight by a slightly southern accent.